Our journey to autism diagnosis: part 2

He finally got it. After six years, Big Bear received his autism diagnosis last week. I wasn’t sure how I’d feel at the news. J and I were fairly confident that he would get the diagnosis, although you can never be 100 per certain. Still, when you’re sitting in a room with someone telling you your child is autistic, it’s …

How to tackle after-school meltdowns

“Did you have a good day?” I asked Big Bear when he came out of school on the first day of the new school year. “Yep”, he smiled. “He’s had a fantastic day,” his Year 2 teacher replied beaming, before listing all the things he’d done that day. He’d even received a merit for his hard work. “Brilliant,” I said …

One of Those Days

One of those days

When was the last time you had ‘one of those days’? You know, the days when everything goes wrong and you can’t wait until bedtime? We have elements of one of those days most days but I recently had a day that was particularly relentless. It started off well. We had a productive meeting at school to go through Big …

Support Without Diagnosis

Why you don’t need a diagnosis to access support

It took almost six years for our paediatrician to act upon our question of whether Big Bear is autistic. We’re now in the middle of our assessment and waiting for the final piece of the jigsaw. Yet ironically now is the time when we least need a diagnosis. You see, it’s not actually going to change anything for Big Bear right …

Celebrating Birthdays With Additional Needs

Celebrating birthdays with additional needs

Christmas had only just finished when Big Bear started asking about his birthday, which was six months away. Celebrating birthdays with additional needs can be a tricky process. Until the age of four he hated opening presents. He found it too overwhelming and every time someone handed him a gift he would either throw it or cry. I’m not sure …

Help A Child Transition Between Activities

How do you solve a problem like transition?

This morning, Little Bear was playing with his trains when I asked him to have breakfast. “No, I play train track,” he replied, not even looking up. “First you have breakfast and then you can play with the train track,” I said. “Nooooooooo,” he wailed, stamping his feet on the ground. A full-blown meltdown ensued, which resulted in me picking …

Living In Limbo Life With Global Developmental Delay

Living in Limbo – Global Developmental Delay

Today is Global Developmental Delay Awareness Day.  A day when parents get together on social media to promote the condition, share their stories and wear yellow. Both our Bears were around 22 months old when doctors filed them under the heading ‘global developmental delay (GDD) and hypermobility’.   “What’s global developmental delay?”   This was the first question people asked after …

Our Journey To Autism Diagnosis Part 1

Our journey to autism diagnosis – part 1

The word autism was always at the back of my mind even before Big Bear was born. My brother has Aspergers Syndrome, and although autism isn’t a genetic condition, it often runs in families. Our journey to autism diagnosis began at our first meeting with the paediatrician, when Big Bear was showing signs of developmental delay. I asked the question …

I Am That Mum

I am THAT mum

I am THAT mum. You know the one. THAT mum with the child having a meltdown in the supermarket. The one you’re glad is not you, whilst silently thinking their child is incredibly spoilt. The one whose child is lying on the floor, blocking the aisle so you have no choice but to step over them to get to the …